Free Genetic Testing for Haemochromatosis Offered in Northern Ireland

A new initiative is offering free genetic testing for haemochromatosis, a condition characterized by excessive iron absorption in the body. This program, spearheaded by Haemochromatosis UK, aims to identify individuals at risk of serious health complications stemming from this genetic disorder. The testing, typically priced at £129, will be available to households in specific postcodes throughout Northern Ireland.

Haemochromatosis can lead to a range of severe health issues, including chronic fatigue, joint pain, liver disease, diabetes, and heart problems. Many individuals may remain asymptomatic until significant damage has occurred. According to research from Haemochromatosis UK, approximately one in ten people in Northern Ireland carries the genetics that predisposes them to iron overload.

The campaign received substantial support from Hagan Homes, which has agreed to cover the full cost of genetic testing through contributions from James Hagan, the company’s founder. Hagan emphasized the importance of raising awareness, sharing a personal story of a loved one diagnosed with the condition despite presenting no initial symptoms.

“Most people affected have no warning signs, yet the potential consequences can be extremely serious if the condition goes undetected,” Hagan stated. He highlighted the commitment of Hagan Homes to support community health initiatives, adding that the campaign’s relevance to someone close to him made the decision to contribute particularly meaningful.

In collaboration with Haemochromatosis UK, the ARC Healthy Living Centre in Irvinestown is facilitating the distribution of information regarding genetic haemochromatosis, along with the free genetic tests. Jenny Irvine, CEO of the centre, expressed her enthusiasm for the partnership, stating, “ARC staff and directors are delighted to be working with Haemochromatosis UK to encourage people in the Irvinestown area to avail of free screening.” She noted that this initiative presents a crucial opportunity to raise awareness about a genetic condition that is often underdiagnosed.

As part of the awareness campaign, Haemochromatosis UK will present the touring photographic exhibition, We are Overloaded, at Millennium Court in Portadown starting on January 19, 2026. Local volunteer Finbar Polin, who is featured in the exhibition, shared his own experience, stating, “It’s scary because it affects you mentally; you don’t know where you are going with it… the next thing I knew I was diagnosed with diabetes.” He emphasized the importance of understanding the condition and noted that many healthcare professionals are not fully aware of its implications.

The initiative not only offers testing but also includes access to genetic counselling, providing individuals with the support needed to understand their results and the potential health impacts. By addressing both awareness and education, this program seeks to mitigate the long-term health risks associated with undiagnosed haemochromatosis.