Hull Woman Fights Terminal Brain Cancer with Fundraiser for Treatment

Louise Jensen, a 39-year-old woman from Hull, is facing a devastating diagnosis of terminal brain cancer, specifically a Grade 4 Glioblastoma. Her family and friends have initiated a fundraiser to secure her access to potentially life-extending treatment in Germany, which could provide her with much-needed additional time with loved ones.

Earlier this summer, Louise and her partner, Adam Philipson, were looking forward to a holiday together. Their plans were abruptly changed when persistent headaches led to the alarming discovery of a large tumor in her brain. Following an MRI scan, she was urgently called to Hull Royal Infirmary for further evaluation. The diagnosis left her with a life expectancy of just one to two years, a reality that has deeply altered her outlook on life.

Following surgery on August 4, during which she remained awake under local anesthesia, Louise learned the tumor measured 4.3cm by 3.6cm and was confirmed as a Grade 4 Glioblastoma. This aggressive form of cancer typically has an average survival rate of only 12 to 18 months with treatment, and a mere 5% chance of surviving five years.

As she approaches the end of a rigorous six-week course of chemotherapy and radiotherapy, Louise has shared her experience with Hull Live, expressing hope through the support of her friends, who have launched a GoFundMe campaign. Their goal is to raise £80,000 to enable her to travel to Germany for a novel peptide vaccine treatment that could extend her life by five to 20 years.

In her own words, Louise stated, “No matter what I have, there is no cure – all it will do is buy me time. But it could buy me a lot of time if it works.” She acknowledges the gravity of her situation, reflecting on her upcoming milestone birthday on November 5, 2023. “I might not make it to 42,” she added, capturing the urgency of her fight against the disease.

Louise’s journey began in July when she sought medical attention for severe left-side migraines. Initially prescribed anti-inflammatories, she returned for further evaluation when the pain persisted. An MRI scan three weeks later confirmed her worst fears. Despite her otherwise healthy appearance, she experienced cognitive challenges, finding it increasingly difficult to read and comprehend text.

Louise underwent surgery to remove the tumor, which led to a treatment plan involving chemotherapy and radiotherapy. She had previously worked as a foot health practitioner, but her diagnosis has forced her to abandon her career and driving license. Meanwhile, Adam has tirelessly researched alternative treatments, implementing a special diet aimed at minimizing sugar intake and processed foods, believing these changes may help combat the cancer.

The couple has turned their focus to the CeGat German Oncology Centre in Tübingen, which will analyze her tumor sample to create a targeted vaccine. The initial cost for this analysis is £20,000, followed by an additional £60,000 for the development of the vaccine tailored specifically to her tumor. Although this treatment does not promise a cure, it is hoped that it will slow the cancer’s progression.

As Louise navigates the emotional turmoil of her diagnosis, she splits her time between her partner and their pets, Dave and Pob, and her mother and step-father. She candidly shared her struggles with depression, stating, “I’m so depressed. I cry every day and every day I’m in bed.” She emphasized the importance of the funds being raised, expressing gratitude for the community’s support.

Her friend, Becky Brount, who helped organize the fundraising efforts, has also planned a comedy night called “Laugh for Lou” at the Good Fellowship pub in Hull, scheduled for the end of January. Louise expressed her appreciation for the overwhelming response to their fundraising campaign, which has already raised over £22,000.

In her quest for treatment, Louise is determined to explore every possibility, even as she contends with the emotional weight of her diagnosis. She hopes that the vaccine treatment available in Germany will provide her with more time to enjoy life with her loved ones. “You life changes in an instant, and it’s hard to get your head around that,” she remarked, underscoring the profound impact of her journey.

To support Louise’s fight against cancer, donations can be made through her fundraising page.