NHS Offers Free Blood Test to Identify Sickle Cell Trait Carriers

The National Health Service (NHS) has announced the availability of a free blood test for individuals interested in determining if they carry the sickle cell trait, a genetic marker associated with sickle cell disease. While many carriers experience no symptoms, they can pass the condition to their offspring, making awareness crucial.

In a recent post, the NHS highlighted that having the sickle cell trait means one carries a gene linked to the disease but does not have the condition itself. Individuals can easily find out if they possess this trait by contacting their general practitioner (GP) and requesting a blood test at no cost.

Sickle cell disease comprises a range of serious, lifelong health issues that predominantly affect red blood cells. The condition is especially common among individuals of African and Caribbean descent, often resulting in painful episodes known as sickle cell crises, increased susceptibility to infections, and anemia, leading to fatigue.

It is important to note that while carriers of the sickle cell trait do not experience the disease, they may face specific risks. For example, during certain situations, such as undergoing general anesthesia or participating in strenuous exercise, sickle cell trait carriers might experience complications due to inadequate oxygen supply.

The NHS emphasizes that anyone can be a carrier of the sickle cell trait, but it is significantly more prevalent among specific ethnic groups. In the UK, most carriers originate from African or Caribbean backgrounds. Expectant mothers in England are routinely offered screening to evaluate the risk of having a child with sickle cell disease.

In regions where sickle cell disease is more prevalent, pregnant women are provided with a blood test to check for the sickle cell trait. In areas with lower incidence rates, a questionnaire regarding family origins helps determine if a blood test is necessary. Women can also request the test even if their family history does not indicate a high risk of sickle cell disease. The NHS recommends that screening ideally occur before 10 weeks pregnant, allowing couples time to consider further testing options.

For additional details, individuals can visit the NHS website.

In a related development, the NHS’s announcement comes amid discussions surrounding a parliamentary petition advocating for sickle cell disease to be added to the list of conditions exempt from prescription charges. Currently, treatment for sickle cell disease does not fall under this exemption, which has raised concerns among patients facing financial strain due to ongoing medication costs.

The petition, titled “Add Sickle Cell Disease to NHS Prescription Charge Exemption List,” has garnered over 25,700 signatures. If it reaches 100,000 signatures, it will be eligible for parliamentary debate. Proponents argue that the current system is inequitable, as individuals with sickle cell disease often struggle to maintain employment while incurring high medication expenses.

In response to the petition, the government stated on 11 August 2025 that there are no plans to revise the list of conditions eligible for medical exemption certificates, including sickle cell disease. The government maintains that comprehensive measures are in place in England to ensure prescription affordability, with approximately 89% of prescriptions dispensed free of charge in the community.

The ongoing dialogue regarding sickle cell disease and its implications highlights the importance of awareness, testing, and advocacy for those affected by this condition.